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Aside

In Memory of Sadie Reynolds Gomez

19 May 1980 – 29 August 2011

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There is a garden in her face,

Where pink petunias and a Lily grow.

A heavenly paradise is that place,

Wherein all pleasant fruits do flow.

So loved, so treasured, so missed.

Love Mom and Dad

In Memory of Sadie

 
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Posted by on August 22, 2013 in Where's My Kid?

 

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She Died on a Monday

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In the seven years leading up to my daughter’s death, she suffered through hundreds of hospitalizations. I use the word “suffered” and I mean it. When I’d get the call from her husband in her distant city telling me she was once-again hospitalized, I’d do a quick survey of where we were in the week. Tuesday to Thursday = probably okay. Friday to Monday = disaster.

And now we have a new television show, entertainment, if you will, from the TNT network entitled “Monday Mornings” and penned by CNN’s top medical guy, Dr. Sanjay Gupta, which explores something all-too-many of us are all-too-familiar with: Medical mistakes.

My concern over the “entertainment value” of such a television show bumps up against relief. Real people with real lives and real families that love them die in real life versus now people will know some of the truth. The problem is that real people get lost in the drama of storytelling. My daughter is real. Our family is real. The loss is untenable always and in all ways.

As you watch this new program, I ask you to keep in mind that they will focus on one error at a time that results in a patient’s death but the truth is quite different. The errors come fast and furious, one atop the other, each moving the individual’s body further and further from its norm until, seven years later, no one can remember what the original problem was; nor can they find it. Instead, the medical collective has created so many new problems, it is virtually impossible to know or understand what they are dealing with today.

Amidst it all is a young, beautiful woman that trusted them to do their best for her. How tragic, then, for her to have to face the multitude of truths she must come to terms with on top of the outcome she must accept. Their “best” made her die. She backed the wrong horse. Their only interest now is to protect themselves.

If this new show turns out to be the type of entertainment you will consume, please remember that it presents nothing close to the truth. It has been sprinkled with just enough truth to make for a good and palatable story but not enough to frighten you and you should be frightened. Like most of you, there was a time I believed in the medical systems and structures put in place to protect me and mine. Having witnessed first-hand the depth of dysfunction in our health care system, I can tell you unequivocally, there is nothing healthy or caring within it. You will meet some fine people there, however, they are powerless and must comply completely in order to survive its political environment.

Should you choose to watch “Monday Mornings”, I can only hope that you will keep in mind that as you sit watching, real medical mistakes are happening. It is not fiction and the people experiencing it are not characters on a television show. They are loved ones. They are beautiful daughters. And they died on a Monday.

© Kim Reynolds 2013

 
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Posted by on February 10, 2013 in Where's My Kid?

 

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I Have Two Kids

One of the more difficult moments to surface when meeting new people after the death of a child is the inevitable conversational curveball. How many kids do you have, Kim? The first time it happened, my heart shattered just a little bit more.

Beat. T-t-two, I finally spew. Of course I have two. You cannot, after all, erase an individual’s entire life and why would you want to? But it’s hard and it’s inopportune and some days you just can’t do the story justice but still you tell it because it’s important to acknowledge that even though life is not even-handed, it is still worth living. Those of us who die out of order must be equally celebrated for having had the courage to stand in there and duke it out for the little time they were offered in comparison to the rest of us.

My experience with loss has changed my approach to introductions. What keeps you busy? has replaced questions about hearth and home. Do you hike? has become my preferred opening line. I take little for granted now. I know that everyone has a story and that sometimes the telling of it shouldn’t take place in the midst of small talk.

Within the context of her job as a brain injury therapist, my daughter used to talk about the importance of being able to put yourself into the shoes of others. I do that more often now, and with greater intention. It’s a tough way to learn a lesson but it reminds me that even though she’s gone she still has plenty to teach me.

© Kim Reynolds 2013

 
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Posted by on January 22, 2013 in Where's My Kid?

 

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The Backyard Rink

It should have come as no surprise to me that my late daughter would pursue prairie life as an adult. All the signs were there early on but never so clear as the year she became determined to build a backyard rink. In Vancouver. At sea level. Good luck with that.

A girl with a lifelong passion for hockey, we’d given her a book called “How to Build a Backyard Rink” the previous Christmas. We didn’t know she’d spent the year from one December to the next analyzing the appropriate barometric pressure combinations of temperature and humidity to determine the exact conditions needed for said rink. We would find out soon enough.

It was a colder than usual winter that December in 1996. She wore that look she’d get when she knew the tumblers were falling into place – a Cheshire cat meets the Holy Grail kind of look. We knew we were in trouble when she started dragging lumber out of the garage.

She announced it at dinner. We’re building a rink – all of us – and she stared her brother down with a don’t-get-me-started look and we readily agreed. We knew, he and I, that his Dad and sister would build it together while I made the cocoa and he stoked the fire. It’s just the way our world worked back then.

Build it they did. The temperature dropped daily and the two built the frame and she checked the weather hourly. These are the days before there was a weather channel on television. She had the weather centre number programmed on speed-dial.

Down the temperature went as the humidity rose and each night we received our weather tutorial from her. It’ll snow tonight, she said. It did – for days. She’d come home from school, her Dad from work, and out they’d go – tamping, flooding, smoothing – until, against all the west coast odds, a beautiful backyard rink emerged.
Sadierink
This photo here is my favourite. She’s bursting through the door, ecstatic with the outcome. I hear her voice as if she’s in the room. Come on, you guys. It’s done! It’s a beauty. And so it was. More beautiful than the rink, however, was this girl of mine and her belief that if you will it so, it will be.

She became so adept at this, she willed her body to last at least two years beyond its natural life. I’ll know when it’s time to go, when he’s ready, she said of her husband. As always, her timing was impeccable.

On this December night, the clouds gather, the temperature drops. We no longer live at sea level. Up here, high on this mountain, a fresh snowfall looms. We bought this house for her – a perfect place for a perfect rink, but she’s not here to share it. One day we’ll build it for her, though, and when we do I’m pretty sure we’ll hear her loud and clear. It’s done! It’s a beauty, all right. Just like her.

© Kim Reynolds 2012

 
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Posted by on December 23, 2012 in Where's My Kid?

 

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I Will

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There’s a song every mother sings to her newborn child first to welcome her home to the world and later to ease her back to sleep in the lonely hours of the middle of the night. Every song is different for every child but each one represents the touchstone at the beginning of a child’s life, a safe place to return to time and time again. For my daughter, that song was I Will from the Beatles’ White Album. Now, sadly, I sing it each night to mark the end of my daughter’s life.

They say the first year of marriage is hell. My daughter was married for eight years and at the ripe old age of 30 found herself planning her own funeral. Apparently time is not a factor in the nation-state of hell. I spent my time writing and rewriting obituaries in my head that would do some kind of justice to my daughter’s short life. Is it glib to mention her favourite city was London; her favourite cereal Honey Bunches of O’s; her favourite makeup anything from Smashbox Cosmetics? All information gleaned from middle-of-the-night conversations, holding her close either in person or on the phone separated by the thousand or so miles between us, waiting for the medication to kick in.

I struggle now to remember and contain every small thing I know about her so it will last the balance of my own life. At 4:00 am, I’d lay awake singing the beloved song to her in hopes my words would vibrate on harmonic airwaves over the Rockies from the Pacific and land in her ear as she lay writhing in her prairie bed in the wee hours waiting for her suffering to end. This is not the journey a mother dreams about for her daughter.

I watched from a distance and felt her pain as she observed the milestones of others. A cousin makes partner, a friend has a child, her brother falls in love for real this time and she struggled not to resent them all. “Why me?” was never part of the conversation although “Why this?” was a constant refrain. Some people have cancer; some people neurological disorders; still others have heart disease or blood disorders. She had it all and more and was denied the simple pleasures of walking, eating, taking a piss. The tumor in her head grew daily, her grey matter pounded resistance and the every-four-hour regimen of pain relief barely delivered.

I want this pain to end but I know what that means, I said to no one in particular in the frozen foods section at the grocery store. I got used to leaking openly in front of strangers. My life was a series of footsteps in fog. Move forward. Keep walking. Don’t stop. I listened in private disgust to others as they bemoaned their respective lots in life, dissatisfied with their work, bitching about their marriages and the other minutiae that make up the average life. I perused bookstore shelves and felt flashes of rage at the litany of titles that litter the self-help section. Don’t sweat the small stuff, it orders. What I wouldn’t do for small stuff. I lost myself in work, in research of a world 400 years ago.

How do I help her? How do I survive it myself? I just don’t know, I said to young, pretty women in Le Chateau that offered their help to try and find something, anything soft and sexy in an XXSmall size 0. She felt like a total failure when she had to resort to the children’s section at Wal-Mart to buy her clothes. It’s hard to imagine my 30 year-old daughter dressed in clothes designed for the active 12 year-old but there was no denying it now. She retreated intellectually as well and that was the saddest part of all. Sadie so coveted her brain.

Clearly, I’m the student in the family, she’d say at dinner after bringing home yet another good grade in high school. Hell, I missed grade 10 and I still kick your ass, she teased her older brother.

Her illness changed us all. No more do we expect help when help is needed. No more do we trust the venerable institutions so valued by the average citizen to ‘take care of me when I need it’. No more do any of us have much to say to anyone preaching a higher power. She said it best for all of us when she said, you think “God” would put anyone through this? I don’t think so. No, Sadie. I don’t think so, either. And so I searched for poetry that might offer solace, or books that haven’t been written about how to experience the death of a loved one with a loved one, not separate from them. There are plenty of books about grief, still more about getting on with your life. There is nothing out there to help a group of people help their loved one die with dignity and share it together. Still, I wish there was. A God, I mean. I wish I could believe there was something, someone who would take care of me, she said. Until you get there, I mean, Mum. But don’t come soon, okay? I made the promise I wasn’t sure I could keep. You have to live it big, for both of us, she said. Those were the times I felt I had to be at my best. I had to engage, really hear the things she needed to say. She might only say them once. I had to hear them and remember everything.

One year, the Issues and Ideas section of the Vancouver Sun newspaper stated that, this year “…approximately 15,000 people died in Metro Vancouver; on average, seven people grieve each one of those losses. That means 105,000 people are grieving in Vancouver at any given point in time…. We have so few models of how to grieve that people’s coping skills at … [Christmas] time are not particularly useful.” No kidding. It goes on to share some brilliant suggestions that might help those people. Suggestions like “drink lots of water” and “rest” and, my favourite, “stay away from alcohol.” That’ll help all right. The enormous disconnect between the truth of life and death and what people tell themselves is the truth, that’s what got to me. If only the living part of the world would see the anguish the dying ones experience, maybe then some changes could take place. Instead the masses revert to such platitudes as “at least you have your health” and “at least your son is doing well”. This last one was always the last straw for me and, years ago, I began responding to it with a new move. Oh yeah? I’d say, which one of your kids are you gonna sacrifice? I have no problem admitting I enjoyed the horrified silence in response – my own version of violence.

I learned early in this game of parent-of-a-sick-kid that you have to be careful just who you say what to. It doesn’t matter now that I was right about the origins of my daughter’s illness all those years ago. The hospital, that money-sucking machine in Vancouver’s west side, preys on the fears of frightened parents everywhere, inveigling them to give, give, give and we’ll be there for you. They don’t tell you that if they blow the diagnosis, she’ll be beyond help by the time it occurs to someone in the system that the only thing left to say is ‘oops.’ Fat lot of good that does my daughter today. Those are a few of the million or so thoughts that flew through my head each day while my daughter still lived as she contemplated white cell counts, magnesium levels, grand mal seizure meds and catheter care protocols. Sometimes I had to remember to tell her I loved her. Often our conversations were so filled with medic-speak that it was only after I’d hung up the phone that it would occur to me it resembled a consultation and not a phone call between a mother and her dying daughter.

I knew it was getting close. I heard it in her voice. I saved messages from her for months, frightened that erasing them would erase her. And then there’s the question of when to go to her. When someone is ill for a long time and they live somewhere else, you parse out visits like cards being dealt from a deck. You don’t know how many there are, when the end of the hand will be played. You can wait and see only so long until you can’t stand it any more and you have to see them. I agonized over making a mistake. What if we wait too long?

I wasn’t ready when it happened. There were still things to do. She was going to help me lay out the chapters of the book we were writing about dying – our last defiant act together. And she still had to help me plan the garden we’re planting for her in the backyard of our new house. I’m good as long as it has petunias, Mum. Petunias? I didn’t know she knew a thing about petunias. Oh, and poetry engraved on rocks. I like that stuff, don’t you? That will make me feel like I have a place in your new place. Cool, huh?

The home we built was the beacon I needed, the flagship that would usher my baby back to her beginnings – the light in the window in case she got lost, its glow a reminder to her that she isn’t alone in the darkness. Here will be the place to heal from it all and learn to move into tomorrow without my youngest child at my side in this world. Promise me you’ll be all right, Mum. Promise me.

I will, I told her. One day I hope I mean it.

© Kim Reynolds 2012

 
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Posted by on December 4, 2012 in Where's My Kid?

 

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Diamonds

It’s ball season again. I used to be able to see the remnants of softball season’s past at the ballpark as each Spring revealed its new recruits and last year’s echoes pressed themselves against the white lines between first and third. I spent the last few years turning away from that magic, unwilling or, maybe more accurately, unable to look at the promise in those young faces. I didn’t know that the time would come when I would let the memories return and bring my child with them.

While I prepared to lose my daughter, I found the pure simplicity of softball too painful to remember. Parents pace the park, desperate to see their girls win. I’d wonder (bitterly) if they knew how good they had it. Do they know the outcome doesn’t matter? Can they see the metaphor that lives in the relay throw from left field to home plate? I doubted it. I doubted them. I used to be them. This season, now that she’s gone from this physical world, the same ballpark calls me.

Year after year the park photographer lines the girls up and they heft the bat onto their shoulder and squint into the sun. Those photos come home with them at season’s end and find their way to the bottom of a lint-filled drawer, stuck in the folds of a box or the back pages of yet another full photo album. When the unthinkable happens, and that child dies, the flow of life’s photos stop, too. Every picture you have must last the rest of your life. Some spark of some photo somewhere dogged me. I rooted through the stacks of photographs of her that fill every vacant surface of my home and there they were. Two photos, a decade apart – same park, same place, same grip – you can seeImage the church across the street over her shoulder. Hat-head. Check. Sun-squint. Check. Good stance. Check.

This season, as I sit in my car across from the park and eavesdrop on this year’s version of her past, I am struck by how each team looks as hers did. There’s the future softball scholarship winner at Virginia Tech on the mound; the stocky, fit third baseman with a gun for an arm; and the requisite one that doesn’t give a shit about ball but enjoys the camaraderie and uses the outfield hours she logs as opportune tanning moments. Through all the years that she was ill leading up to her death, I couldn’t see these girls for what they are. They represented a past with no future possibilities to me, and they broke my heart.

Now that she is gone, she takes her place beside them once again. She’s in every play at home plate. And each time one of them swings the bat and drops a high, hard one in no man’s land behind third base, I’ll see her trot off the field, casually toss her helmet into the dugout and glance my way just long enough to say with a look, “Did you see that?” Of course I did. That picture has to last a lifetime.

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© Kim Reynolds 2012

 
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Posted by on April 23, 2012 in Where's My Kid?

 

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